Olivia's Light serves children living with a rare disease, before and after the diagnosis.
Olivia's Light advocates for broad genetic testing for pediatric patients that are suspected of having a disease-causing genetic condition. Additionally, we raise funds for children living with a rare disease who have qualified for palliative care and other necessarily medical and/or disability programs. We're also excited to announce that the 2027 Olivia's Light Pediatric Rare Disease Conference will take place in Spring 2027 at the University of Virginia, which aims to improve patient care for pediatric patients living with a rare disease. The conference will offer Continuing Education (CE) credits to healthcare providers, and parents/patient advocates are welcome to attend.
Thank you for helping us drive our mission forward!
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