Olivia's Light serves children living with a rare disease, before and after the diagnosis.
Olivia's Light advocates for broad genetic testing for pediatric patients that are suspected of having a disease-causing genetic condition. Additionally, we're fundraising to help children who are under the medical guidance of institutional palliative care programs (ex. UVA Health Children's). These funds will support medical equipment, and other medical services and needs that are not covered by the child's insurance provider, yet deemed necessary by the child's healthcare provider. We're also excited to announce that the inaugural Olivia's Light Pediatric Rare Disease Conference will take place in June 2025 at the University of Virginia. The conference will offer Continuing Education (CE) credits to healthcare providers, and parents/patient advocates are welcome to attend.
Thank you for helping us drive our mission forward!
